И вот наша история.
Мы живем полноценной семьей, в городе Вильнюс.
19 августа 2011 года у нас родился долгожданный малыш. Его вес составлял 1470 гр. и рост был 45 см.
Сына мы назвали Мартин. Мы его так долго ждали, что он родился раньше времени. На 29 неделе беременности он захотел увидеть свет… Такое преждевременное появление нашего сына не обошлось без побочных эффектов : мальчик был слабый с неразвитыми легкими.
Он долго лежал в инкубаторе, кормили через зонд почти целый месяц, так как у таких маленьких деток не развит сосательный рефлекс. А сколько было радости когда сыночек начал кушать из бутылочки…
Самый глубокий след здоровью Мартина , пытающемуся цепляться за его маленькую жизнь – две тяжелых инфекции. Это – сепсис и гнойный менингит, в следствии которого был поврежден головной мозг. Также желтуха новорожденных. Куча антибиотиков и лечебных препаратов. Так, в отделении недоношенных детей мы провели 2 месяца.
Вернувшись домой, думали – Самое страшное позади, но оказалось наоборот.
В 3 месяца Мартину прооперировали левый глазик (ретинопатия сетчатки глаза). После операции мы как и все радовались нашим ребенком …
В 7 месяцев мы первый раз посетили центр развития ребенка, где нам диагностировали детский церебральный паралич (ДЦП) и, как сказали врачи, это случилось из-за родовой травмы. После родов наши медики это скрыли.
А еще тяжелее когда тебя подводит мечта…… когда ты думаешь : Все, мы выкарабкались, что уже должно быть все хорошо, ведь у нас уже было тяжелое испытание с менингитом…..
Очень тяжело встать и бороться с этой болезнью…
Сегодня нам 3 года. Мартин сам не может сесть, он не сидит, не ползает, не ходит, не говорит…. Все, что он научился делать – это переворачиваться с живота на спину и наоборот. Слава Богу, не пострадал интеллект. Мартин хоть и не разговаривает, но он все понимает и очень хочет общаться. Он так любит детей!
Единственный способ поставить нашего сына на ноги – это постоянная реабилитация. Мы используем все возможные способы лечения, которые нам дает государство, но 2 раза в год санатории и в центре развития для такого ребенка это очень мало. Кроме этого мы возим Мартина частным образом к кинезитерапевту, остеопату, в бассейн. Летом хотим попробовать иппотерапию (занятия на лошади). Все это очень большая нагрузка для такого маленького ребенка. Не каждый взрослый может перенести то, что терпит этот удивительный малыш.
Мы лечились за границей, были в Украине, Евпатории. Целый месяц изо дня в день с нами занимались врачи. Мы прошли физиотерапию, магнито – лазерную терапию, делали логопедический массаж. Мартин окреп, есть улучшения. А самое главное – нам дали надежду… если заниматься, то в 6 – 7 лет сын может начать ходить.
В феврале 2014 года мы с сыном были на реабилитации в Euromed реабилитационном центре в Польше, откуда привезли хорошие результаты. В июне 2014 ездили на повторный курс. Мартин стал подниматься на четвереньки. Хотелось бы, конечно, посетить этот центр еще раз.
Обидно то, что семейных средств не хватает, лекарства и процедуры дорогие.
На 1 курс реабилитации в Евпатории (4 недели) – нужно 3500 евро. В Euromed реабилитационном центре (4 редели) – 7200 евро. А в будущем нам предлагают сделать операцию USA Sent Luise – селективная дорсальная ризотомия. Её цена – 42000 $.
Кроме того, Мартину регулярно нужна помощь социалистов, кинезитерапевтов, логопедов.
Поэтому очень просим услышать нашу просьбу. Заранее благодарим всех за моральную и материальную помощь.
Наша заветная мечта увидеть, как наш сын ходит…
Для того, чтобы помочь сыну, мы открыли фонд на имя Мартина.
Ваши денежные средства для благотворительного фонда „Labdaros ir paramos fondas Martinui Mikalajūnui paremti“ будут направлены исключительно для лечения Мартина, поездок в санатории, дорогостоящей реабилитации, покупок медикаментов и для необходимого оборудования.
Благодарим всех за понимание и надеемся на вашу помощь…
Родители Мартина.
Jurate
Laba diena. Toks šaunus mažylis, jam negali nepasisekti…Stiprybės, sėkmės, kantrybės visai jūsų gražiai šeimynai… Martinai, tu šaunuolis, būk laimingas. Tikiuosi, kad mūsų mažytė parama ir malda nors kiek padės Martinui…
Kristina
Aciu Jums. Visu zmoniu pagalba mes tikimes kad martinas kada nors zengs savo pirma zingsvi…
Rita
Labai graudi jūsų istorija.Sunku nulaikyti ašaras. Norėčiau palinkėti tėveliams didelės stiprybės, nenuleisti rankų. O mažajam Martinukui kuo greičiau atsistoti ant savo kojyčių, žengti žingsnelius.Net nežinau ką dar pridurti, tiesiog, linkiu, kad atsirastų daugiau žmonių, norinčių ir galinčių jums pagelbėti finansiškai.
Kristina
Aciu, Rita uzsilta zodi. Zinoma, labai graudu, kad viskas remiasi i pinigus…
Baltlokis
Solydziai parasyta 🙂 Aciu uz toki straipsni, malonu skaityt
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